Saturday, September 13, 2008

"To get through the hardest journey, we need take only one step at a time... but we must keep on stepping."


Hi Everyone!
I'm pretty new at this "blog thing" but Ronnie suggested I do one so everyone would be able to follow Alan's progress through this journey and send him well-wishes along the way.

~ Juli

bbbbbbbbbbbbbbbbbb
"Toto, I have a feeling we're not in Kansas anymore."
Dorothy, The Wizard of Oz

In mid August Alan made an appointment with a gastroenterologist, Dr. Vincent A. Gibbert, because he was having some stomach issues. An endoscopy was performed on Tuesday, August 26th, 2008 at which time a very suspicious tumor was found in the lower part of his esophagus. A biopsy was done and a follow-up appointment was scheduled for the next day.

The news was not good. Alan was diagnosed with Esophageal Adenocarcinoma.
"I am a bear-of-very-little-brain, and long words bother me."
Winnie the Pooh
Although commonly associated with lung cancer, adenocarcinoma is a type of cancer that develops in cells lining glandular types of internal organs, such as the lungs, breasts, colon, prostate, stomach, pancreas, esophagus, and cervix.

A P.E.T. scan was scheduled for the following Friday but, because of the Monday holiday, the gastroenterologist did not receive the report until Tuesday, September 2nd.

Because this cancer is known to be extremely aggressive - the typical "plan of action" is to quickly begin chemotherapy, radiation, and - once the tumor 's size is reduced - surgery is performed to remove the affected part of the esophagus, and re-attach the stomach to the remaining part. Everything sounded "scary but hopeful" so Alan was anxiously preparing to move forward with the plan.

However, after Dr. Gibbert's further review of the studies, it was determined that in just 3 days the tumor had already increased in size! His opinion was that there was not enough time to wait for the chemotherapy to shrink the tumor so his office contacted Dr. Randall B. Brown, a well-respected Macon Cardiothoracic Surgeon. Alan met with him on Tuesday and was prepared to enter the hospital immediately.

This would not be the case. Dr. Brown explained to Alan that the adenocarcinoma had moved vertically up his esophagus, was in the mucin, had "infiltrated" -- (his word) -- the mucous membranes in the top part of the stomach, and there appeared to be some possibility of lymph node "involvement" -- (again, his word). With that said, the original "scary but hopeful" plan has been postponed.

Because of Alan's inability to eat, he has become extremely malnourished. The "new" plan of action will require him to build up a "nutritional level" that will give him some much needed strength to prepare for the possibility of surgery at a later date.

If the surgery proves to be his best option, Alan will travel to Charleston , S.C. and the surgery will be performed by THE top surgeon in this field, Dr. Carolyn E. Reed. To learn more about the surgery, you can go to:

http://theoncologist.alphamedpress.org/cgi/reprint/4/2/95.pdf

In the meantime, Dr. Brown has ordered additional tests to be performed in order to determine the scope of the disease and options for treatment. No doubt this next week will be a busy one for Alan!
Dr. Brown believes that medicine and miracles go hand-in-hand. Please pray for both.
A blessing from Genie...
I too am lifting you up in prayer - praying for an extra measure of courage and strength. I pray that we, your friends and family will be the people you need us to be during this journey.
"May the Lord bless you and keep you; and make His face to shine upon you, and be gracious to you; may the Lord lift up His countenance upon you and give you peace." Numbers 6: 24-26

22 comments:

Unknown said...

Alan,

Please know that I and the fellowship of Beulah Baptist Church are lifting you up in prayer. You know that you are a beloved treasure to me. I will pray for you every day. One of my favorite quotes comes from a woman who faced the darkness of a concentration camp - "There is no pit so deep, that God's love is not deeper still." -Betsie Ten Boom
I love you Alan.
Genie Hargrove

Unknown said...

Here I am prayerful, loving, and thankful that I can be with you along this journey...

With love and admiration,
Tassi

Jackie said...

Dear Alan,
Your courage and creativity in the face of so much adversity is and has been an inspiration to all who know you. You have lived so many life lessons for us and you continue to teach us how to live.
We love you so much.
Jackie & Larry Johnson

Audrey said...

Juli -- Thanks for creating the blog so we can stay informed and let Alan know we're with him on his journey. I appreciate it so much, especially since I'm three hours' drive away.
Alan Darlin -- You're in my thoughts and prayers, and the congregation of Tallahassee's St. Stephen Lutheran Church is praying for you, too. You have always been so loving and giving to everyone around you, and that love is bouncing back onto you. Let it wrap you like a cocoon and keep you strong on your journey.
With much love,
Audrey

Terri said...

Hi everyone,
First I would like to thank Juli for starting this blog to keep everyone informed about Alan.
I am Alan's sister in law and driver for all Doctor visits and medical test. I would like to clarify some of Juli's information. At this time there is no definite information about the size, rate of growth, stage or plan of treatment. At this point we have seen 2 doctors and have a lot of information about what might be. We will see Dr. Brown again Thursday morning, so we should have more concrete information then.
I did read all the comments to Alan this afternoon. He was very touched and appreciative. Thank you to all of you who love our brother as much as we do.

Unknown said...

Hey Alan, don't worry, everything will be fine! I know it is your b.day soon.....or I missed it already? Anyway happy b.day Alan, I will keep in touch with Kim and I'll come to see you soon. A BIG hug.

Ivan

Genie Hargrove said...

Alan,

It's Genie again. I bring you words from Jordie Hudson (Judy Allen's daughter). She said to tell you that she is thinking of you and praying for you. Judy sends her love and prayers as well.

I too am lifting you up in prayer - praying for an extra measure of courage and strength. I pray that we, your friends and family will be the people you need us to be during this journey.

"May the Lord bless you and keep you; the Lord make His face to shine upon you, and be gracious to you; the Lord lift up His countenance upon you and give you peace." Numbers 6:24-26

Love and prayers, Genie

Unknown said...

Love and many,many prayers from the Ty Ty Gibsons. We look forward to seeing you on Saturday!
Brian, Judith,Daniel and Melissa

Genie Hargrove said...

Divine Providence! Indeed God is loving and and caring and paying close attention. Alan's doctors appointment was postponed today and that gave me the opportunity to have a visit with Alan.

First and foremost I bring you greetings from Alan. He is so thankful to each and everyone of you for your care and concern. Juli - many thanks from Alan for setting up this blog - many thanks from me as well. Alan treasures each and every one of your messages - they warm his heart and bring a great bright smile to his face. Alan sends his love out to you all. As I was leaving today Alan & I were having a friendly little argument about who blessed who the most - I think the answer is that God greatly blessed us both.

Alan is filled with faith and courage and finds strength in his God and in each of you. Keep the faith and keep up the good work.

Pray with me today -
Merciful Creator - we lift Alan up to you and pray once again for strength and courage and cheer Give him the grace he desires and the faith he needs. For ourselves, we pray for the faith of a tiny mustard seed - the faith that can move a mountain and as we find that faith let us pray to move that mountain for Alan. Draw each of us closer to you, closer to Alan and closer to each other. Let Alan feel the blanket of our love and care.
Amen.

Peace and blessings to you all,
Genie

Anonymous said...

My dearest darling Alan,
Michael and I were so glad to be able to spend time with you last Saturday. Sitting on the ottoman at your feet, laughing and talking, showed me your strength and hope and that you're going to win this fight! You are one of the dearest people in the world to me and I am praying that you'll be on the road to recovery VERY soon. Hope to see you this weekend!
I love you,
Diana

Anonymous said...

genie,
I wanted to thank you for your daily prayers , they are so inspiring to me , when I get low , I open up this blog and read your words and the weight lifts. Thank you so much for visiting Alan yesterday , he was glowing when I got home .
with much love,
Ronnie

Janet said...

Alan,

We wanted to leave some thoughts to encourage you:

Through the Lord's mercies we are not consumed, because His
compassions fail not. They are new every morning; Great is Your faithfulness. "The Lord is my portion," says my soul, "Therefore I hope in Him!" (Lamentations 3:22-24)

By the way, His grace is truly sufficient!

You are in our thoughts and prayers.

Love in Christ,

Jerry and Janet

Sue B said...

Dear Alan,
The comments that all your friends and family have left are just so precious and uplifting. I know they have got to be an encouragement to you, because they certainly are to me. You are what we all hope to be, a person of great faith,courage,and one that still shares his love with us all, no matter your circumstances. Like so many others, I have prayed for you and lifted you up through out the days and nights. Your are truly an amazing person and I love you dearly. I know that our God is watching over you and He will take care of you.
Much love always, Sue B

Anonymous said...

Happy, happy birthday J. Alan! Hoping you're enjoying every moment of it!

Love, love, love YOU!
Tassi

Unknown said...

Happy Birthday from Genie & Linda in Fort Lauderdale! We have been keeping you in our thoughts and prayers this weekend and Linda is looking forward to seeing you when she in Milledgeville in a couple of weeks. We love you Alan, Linda & Genie

A Prayer for Today

O Thou in whose great arms all the children of earth are embraced, Here in thy presence we remember our kinship with all human kind. We rejoice for those who are in full health and strength.

Our hearts reach out toward those whose ways are ways of suffering, of body, mind, or soul.

May it be that thou shalt find us reaching out to them, Not only with our hearts but with our hands also, To help them in the bearing of their burdens, To help in the lifting of their burdens.

Amen

Peace to you all

Mike Spillers said...

Hola Alan!

It was 'Swonderful to visit with you and my cuz today in your beautifully appointed Macon home. We hate we just missed seeing Gertrude! We very much enjoyed talking, laughing, seeing your amazing art and just being in the presence of someone with such charisma and excitement for life. Dennis and I are sending you good thoughts and hope to see you again quite soon.
Mike and Dennis
ps - eat those brownies!

Unknown said...

Dear Alan,

I arrived at Groome Transportation in Macon from the Atlanta Airport around 10:30 this morning. As I was dragging my luggage across the parking lot I heard a flock of birds making a huge racket. I looked up into the sky to see what was going on up there and I saw the most amazing sight - a magnificent American bald eagle. For one second I though to dig my camera from the depths of my luggage but as stood in awe I could not move. That magnificent bird flew across the sky right in front of me, circled around behind me and flew back. It was for me a great gift from God and so as you hear these words just imagine that beautiful creation of God soaring in the sky as a gift to you and I give you this prayer as well.

Thank you, thank you, thank you - generous God. You have injected life with joy, thus we know laughter. You have dabbled creation with color, thus we enjoy beauty. You have whistled a divine tune into the rhythm of life, thus we hear music. You have filled our minds with questions, thus we appreciate mystery. You have entered our hearts with compassion, thus we experience faith. Thank you God! Thank you, thank you, thank you.

Linda & I are keeping you close in our thoughts and prayers. Thank you for your wonderful heart - for the blessings you have brought to so many.

Keep the faith my dear friend.

Love, Genie

Janet said...

"And the Lord, He is the one who goes before you. He will be with you, He will not leave you nor forsake you;do not fear nor be dismayed." (Deuteronomy 31:8)

Father, thank You that You are Lord over all of our circumstances in our lives. Help us to trust you even in difficult places. Reveal Yourself mighty on Alan's behalf. In Jesus' name, Amen.

Unknown said...

Alan asked me to leave a message thanking everyone for their prayers and thoughts. Keep them coming! Alan is scheduled to go to surgery Monday morning at the Medical Center of Central Georgia.

Steve said...

Dear Alan
Professor Pangloss, my favorite character in the book, Candide, by Voltaire.said "Everything turns out for the best in this, the best of all possible worlds." I think that says it all.
When you finish all the medical stuff I'll read the book to you.
Talk to Kim about your impending musical career. A man with all those beautiful birds in his head must be full of music.
Floyd is staring at me as we speak(write). You didn't tell me why you named him Floyd. He's my favorite bird.
I find it amazing that you have so many friends. Thank you for sharing them with me.
Hello to them all...
I relish every minute I spend with you and Ronnie and friends "porch Monkying'
and consuming our fun beverages.
Thank you Jackie, my Princess Sister for bringing Alan into my life.

Alan, look at life as a garden, vinyard, if you wish.You got a few weeds.
You also have the best gardeners in the world. The staff at the Med center.
Carolyn and I wish you love.
We wish you "Time"

Anonymous said...

greetings from the porch,
Alan wanted me to assure everyone how great he is doing. He feels great and is ready both mentally, physically and best of all spirtually to fight this cancer. He sends hugs and love to all of you. He is holding you in his heart and this gives him strength. So please keep up the prayers and faith , god is going to get us through this. Also I don't know who watches Project Runway .Suede was the last designer voted off , just thought you might want to know.
Much love to all of you ,
Alan and Ronnie

Unknown said...

Hi Alan! You have been on my mind and in my prayers all day. I wish I had known about the special church service today, I would have loved to have been there. I know it must have been so special for you. You are so loved by so many..may you feel that love surround you as you begin your journey on the road toward healing in the morning. My prayers will be with you. God Bless you and much, much love. Love, Judith